Come pray a rosary for Andrew Paul Herrmann
We need your help.
Our grandson, Andrew Paul Herrmann was born May 22, 2009. Andrew has wonderful parents. His dad is in the U.S. Marine Corps and has served duty in both Iraq and Afghanistan. Andrew's mom is his full time best friend and supporting wife to our son.
Since birth Andrew has had developmental problems which have required many hospital visits and countless numbers of tests. Although Andrew has continued to grow in size he has not developed his motor skills. He cannot sit up without being supported, cannot roll over, crawl or stand. He suffers from epileptic seizures and will probably have mental development issues. He is a cute little guy and does make typical babbling sounds, smiles frequently and usually seems to be happy.
After months of trying to determine what was causing his medical issues a group of scientists in the Netherlands has diagnosed Andrew with Adenylosuccinate Lyase Deficiency. The condition is a genetic disorder and is not treatable.
There are only about 50-60 known cases of the condition, but it is expected that there have been more cases, but diagnosis was not made. Europe has done the most research on the condition and the medical group in the Netherlands made the diagnosis from Andrew's blood and spinal fluid. Andrew''s case is considered severe as compared to others, but again there is not much information to compare with. Unfortunately the condition will not improve over time and life expectancy is difficult to project. Research is going on to learn more about the cause of the condition and to hopefully identify a treatment or cure. But, for now there is no medical solution.
Andrew needs a miracle and this is where you can help. Please continue to include Andrew and his parents in your thoughts and prayers and forward this email on to others who you know who would be willing to do likewise. The power of prayer can be strong and we all know of miracles that have occurred because of it. If we can get millions of people praying for Andrew then maybe we can create a miracle. It is our best hope.
Your friendship is much appreciated.
Thanks.
Bob and Diane Herrmann
Carlsbad, California
2 comments:
Hello. I wanted to let you know that my daughter, Bethany, was diagnosed with Adenylosuccinate Lyase Deficiency in 2004 at the age of 9 months. Shortly after her diagnosis I was able to make contact with another parent that had a son with this disorder. Although she could offer no answers to me about this rare and highly variable disorder, I remember it helping me just to correspond with her. I didn't feel quite so alone. I will say a prayer for little Andrew and for his parents and you his grandparents as well. Should you or his mom wish to correspond my email is c.riggs.1@hotmail.com. God Bless you all.
Dear Diane,
I attempted to post a comment here last week but for some reason it has never appeared. I thought that I would try again. My daughter was also diagnosed with this disorder about 8 years ago. I know how lonely and isolating it is to receive such a rare diagnosis. I will pray for your grandson and for your family.
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